on

Parents' fears for 'werewolf' daughter, five, after the only laser capable of curing her medical condition in Brazil breaks, leaving her completely covered in hair 

  • Kemilly Vitoria Pereira de Souza was diagnosed with hypertrichosis
  • The rare condition means the patient's body is heavily covered in hair 
  • The five-year-girl also has larger lips and nose due to her condition 
  • Kemilly's mother said that some people had said horrible comments about her daughter and compared her to an animal

A five-year-old girl suffering from a condition commonly referred to as werewolf syndrome has stopped receiving treatment after the hair removal device at the local hospital broke. 
Kemilly Vitoria Pereira de Souza was diagnosed with hypertrichosis, a rare condition which means her body is almost totally covered in hair and her lips and nose are also larger than usual. 
In December 2013 the family had to move 800 miles from their hometown to Goiania for little Kemilly to receive proper treatment but hospital staff have struggled to find a solution.
Kemilly Vitoria Pereira de Souza was diagnosed with hypertrichosis, a rare condition which means her body is almost totally covered in hair and her lips and nose are also larger than usual
+7
Kemilly Vitoria Pereira de Souza was diagnosed with hypertrichosis, a rare condition which means her body is almost totally covered in hair and her lips and nose are also larger than usual
Kemilly's mother said that some people had said horrible comments about her daughter and compared her to an animal
+7
Kemilly's mother said that some people had said horrible comments about her daughter and compared her to an animal
The hospital based in the southern Brazilian city of Goiania have been unable to stem the hair growth following their inability to repair or replace the broken hair removal device.
Despite Kemily's condition, her mother said she does not face any problems at school but recognises she might face prejudice in later life.
'There are no issues at school as everyone knows the problem and teachers explained to the children that she has a health problem, but we still face prejudice in other places,' Kemilly's mother, Patricia Batista Pereira, said
'The other day we were at a theatre show and we heard a person saying that my daughter looks like an animal. As a mother, this hurts so much,' she recalled.
For the last five months poor Kemilly's condition has spiraled out of control, with the hair clearly visible on the young girl's face and arms.
Without treatment for the past five months, her parents and doctors now fear that all the progress made in the last two years could be lost.
Her father Antonio de Souza, 37, said: 'We are afraid that all the progress achieved through the treatment will now be lost. The child herself sees the hair is growing back and she's asking us when we are taking her to the hospital to have it removed.'
Without treatment for the past five months, her parents and doctors now fear that all the progress made in the last two years could be lost
+7
Without treatment for the past five months, her parents and doctors now fear that all the progress made in the last two years could be lost
In December 2013 the family had to move 800 miles from their hometown to Goiania for little Kemilly to receive proper treatment but the young girl has struggled to find a solution
+7
In December 2013 the family had to move 800 miles from their hometown to Goiania for little Kemilly to receive proper treatment but the young girl has struggled to find a solution
Her father Antonio de Souza, 37, said: 'The child herself sees the hair is growing back and she's asking us when we are taking her to the hospital to have it removed'
+7
Her father Antonio de Souza, 37, said: 'The child herself sees the hair is growing back and she's asking us when we are taking her to the hospital to have it removed'
Hospital representatives claim the medical device used for the therapy is broken and they need a piece of equipment only made in Israel to fix it.
The hospital has managed to agree a contract to rent a laser device, but this is not compatible with the needs of children.
'It is a serious situation that needs be solved quickly as the patients need the medical sessions continuously,' the hospital said. 

WHAT IS HYPERTRICHOSIS AND HOW CAN IT BE TREATED? 

Hypertrichosis is the term used for the growth of hair on any part of the body in excess of the amount usually present in persons of the same age, race, and sex.
It excludes excessive hair caused by abnormally high levels of male hormones.
Excessive hair may cause cosmetic embarrassment, resulting in a significant emotional burden.
Treatment options are limited, and the results of therapy not always satisfactory.
No single method of hair removal is appropriate for all body locations or patients, and the one adopted will depend on the character, area, and amount of hair growth, as well as on the age of the patient, and their personal preference.
The currently available treatment methods include cosmetic procedures; bleaching, trimming, shaving, plucking, waxing, chemical depilatories, and electrosurgical epilation; and hair removal using light sources and lasers.
Laser-assisted hair removal is the most efficient method of long-term hair removal currently available.

Hospital representatives claim the medical device used for the therapy is broken and they need a piece of equipment only made in Israel to fix it
+7
Hospital representatives claim the medical device used for the therapy is broken and they need a piece of equipment only made in Israel to fix it
Despite her noticeable condition, Kemilly has not faced any bullying issues at school as pupils are aware and respectful of her medical condition, her mother said
+7
Despite her noticeable condition, Kemilly has not faced any bullying issues at school as pupils are aware and respectful of her medical condition, her mother said.
SOURCE: DAILYMAIL

Comments

Post a Comment